The Epidermolysis Bullosa Research Partnership is a USA based non-profit organisation dedicated to funding research to find innovative genetic testing, treatment and ultimately a cure for EB.
In the autumn of 2021, Tom hosted an online fundraiser for EBRP called ‘Venture Into Cures’, which raised over US $2.4 million. The Brothers Trust is currently working closely with EBRP to find innovative ways to further support this amazing work and raise further awareness to help fund this vital research into EB.